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Maximizing Rates of Consent to Record Linkage and Additional Data Collection

All network activities in this fourth thematic area will focus on innovative methodological approaches for increasing rates of consent to record linkage and additional data collection activities (e.g., the collection of biomeasures), including the reduction of interviewer variability in obtained rates of consent, understanding various opinions regarding consent for data linkage, and possible confounding of non-consent to multiple data collection requests (e.g., administrative record linkage and collection of biosocial measures). Methodological innovations in this area will emphasize the reduction of respondent burden, innovative approaches for administering lengthy surveys with multiple types of data collection (e.g., survey and physical measurements), methods for emphasizing the benefits of record linkage, synthesizing prior literature on innovative approaches to obtaining consent, and explaining interviewer variance in consent rates with future training of interviewers in mind.

NIMLAS activities and funding considerations in this thematic area will be heavily weighted toward critical directions for future methodological research in longitudinal studies of aging that have been identified in the working group meetings for this area. These can be found below, and we will generally entertain innovative applications of generative AI technology for each of these critical directions.

Current Critical Directions for Future Research on Maximizing Rates of Consent to Record Linkage and Additional Data Collection:

  • Burden Exchange: Does communicating to respondents how record linkages can reduce their survey burden improve consent to record linkage?
  • Consent and Attrition: Does a failure to provide consent predict eventual attrition in later waves?
  • Consent Burden: What are best practices in exactly how much consent to additional data collection to ask for in a given study?
  • Differential Consent: What differences exist among socio-demographic subgroups in rates of consent to different linked data products, and what are the mechanisms/reasons for these differences?
  • Errors in Record Linkage: Among respondents consenting to the linkage of additional data sources to their survey responses, are there errors arising in the record linkage process, due to probabilistic matching or other mechanisms? If so, can we account for these errors in our analytic methods?
  • Institutional Trust: How does mistrust in governments / institutions impact consent decisions and retention?
  • Maintaining Privacy: When linking data sources after consent to record linkage has been maintained, what are the most effective strategies for maintaining respondent privacy and limiting disclosure risk in linked survey data products?
  • Mode Effects on Consent: How do different data collection modes compare in terms of consent rates for requests for additional data collection and/or record linkage? What are some of the mechanisms underlying any differences in rates of consent across data collection modes? What are the implications of these effects for potential mixed-mode strategies to use for obtaining consent to additional data collection requests?

Bibliography

All bibliography entries below are tagged with colored shapes corresponding to the major thematic research areas of NIMLAS. Specific critical topics for future research that the particular product within each area is addressing are provided in text next to the colored shapes.

Inclusion of minority populations Data collection methods for improving representation

Addressing Attrition  Addressing increasing attrition rates

New measurement technologies  New measurement technologies

Consent to linkage  Consent to additional data collection

Improving Measurement  Improving measurement in longitudinal studies of aging

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